We hope and pray that PC continues to make good progress and that this latest concern does not turn out to be a major problem.
This journal is both informative and brave – a real inspiration as to what can be done to beat this disease while at the same time not holding anything back about the cost of such a course of action.
Thanks as well as best wishes to you both.
Graham & Andrea
]]>I am one of your grateful & prayer full readers. Thank you. Stan
]]>After a squamous cell lesion led me to a dermatologist some years ago, I began the ritual of semi-annual full-body checkups, purportedly so that any further skin cancer would be caught early and removed with the least risk and discomfort.
Well, not exactly. A small spot on the bridge of my nose was passed over repeatedly until late last year when I asked about it, and the dermatologist casually decided to do a biopsy. It was a basal cell lesion. I had Mohs surgery which left me with a “defect” (i.e. a big hole – I love medical vocabulary) which was then repaired by a cosmetic surgeon. Not a terribly unpleasant experience, but it reinforced my belief that patients need to be active participants in their care and engage their physicians.
Obviously, a skin cancer, even something as innocuous as basal or squamous cell is nothing to toy with when one’s immune system is on sabbatical. You are absolutely right to stay on top of this thing. Hopefully it is nothing of consequence.
All my best to you and Harvey. Keep the faith and keep up the fight. You are an inspiration!
-Grant
]]>Beth Havey
]]>Been away for six days and had computer problems before that. I have been plagued with skin problems since 1977. My first dermatologist insisted I use topical creams to clean up my head. After 28 years I learned that the creams contained a chemo drug and the pharmas acknowledged that these creams can cause problems with white blood cells (Duh!). Parallel to the findings I realized that the scalp was developing more actinius, basal cell, and squamous cell growths. When I saw Dr. Keating at MDA last July, his first reaction was to cover my exposed skin all the time, which I have been doing since 1977. He reviewed with my wife and me the potential problems of skin cell carcinomas when one has CLL. OK! Now what? I have been gassed (CO2)regularly since 2005 when I dropped the cream use every six months. After my last bout with sqauamous cell carcinoma in May 2008, I am now on a three month schedule to see my dermatologist. I agree with all the other writers here that biopsies are a requirement every time a bad looking patch appears on one’s skin. You need to just make a specific demand for biopsies. Geez, when is the medical field going to recognize the inter-relationships that exist within our own bodies that present such a case as PCs?
Both of you hang in there. It will get better!
Barry
]]>Any long-term hospital experience can be terrifying at worst and frustrating at best (I spent 3mos with my son who sustained a head injury due to an auto accident at age 16). Harvey must be an incredibly resilient man and is most fortunate to have you on his side (as are we all). It will all be worth it when you and Harvey can go home to beautiful Sedona.
I think of and pray for you and Harvey daily. I know that all will be well.
Thank you again for all that you do for those of us with CLL.
Take care,
Anna