Warning: Constant DISALLOW_FILE_EDIT already defined in /home/clltopic/www/journal/wp-config.php on line 8

Warning: Constant ABSPATH already defined in /home/clltopic/www/journal/wp-config.php on line 35

Warning: Cannot modify header information - headers already sent by (output started at /home/clltopic/www/journal/wp-config.php:8) in /home/clltopic/www/journal/wp-includes/feed-rss2-comments.php on line 8
Comments on: A Day in the Transplant Ward https://journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/ The Story of an Elective Cord Blood Stem Cell Transplant Tue, 30 Apr 2013 02:20:17 +0000 hourly 1 https://wordpress.org/?v=6.2.4 By: Beth and John https://journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-349 Sun, 13 Apr 2008 21:13:11 +0000 http://www.journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-349 There is no one on this earth in our minds that is and was as prepared as you and Harvey. Way to go!!!!!!!!!!! Beth and John

]]>
By: Liz https://journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-273 Sat, 05 Apr 2008 20:45:33 +0000 http://www.journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-273 As usual your posts are challenging and inspiring.
Cheering for you and your team!
Liz

]]>
By: Rita Horwitz https://journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-272 Sat, 05 Apr 2008 17:59:43 +0000 http://www.journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-272 Chaya,
My sentiments also. Preparation, preparation, Preparation.
Years of a commitment To get into good shape. Good oral hygiene.

And Chaya, the perfect coach. My best to you and Harvey. I think of you each day.

Blessings,
Rita

]]>
By: Patt Egiziano https://journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-270 Sat, 05 Apr 2008 03:01:42 +0000 http://www.journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-270 *** You are all so very kind to hold our hands throughout your ordeal, Bless you both!

]]>
By: Patt Egiziano https://journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-269 Sat, 05 Apr 2008 02:59:44 +0000 http://www.journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-269 I knew Harvey would be our hero. I felt it!

You are all so very

I like the idea of the female DNA winning over his new blood cells….just maybe Harvey will be become a wonder at decorating and also develop an urge to help you in the cooking & cleaning department once you’re back home! Ying + Yang

All my best to you both-
Patt E

]]>
By: Bruce https://journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-268 Sat, 05 Apr 2008 01:44:35 +0000 http://www.journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-268 Looking good! Every day will get better. For Marilyn Boemer I wanted to provide a link to my wife’s blog. She is just short of her two year mini-allo transplant anniversary. She’s beat CLL and has only (comparatively) minor problems with GvHD. Primarily a persistent skin rash. The blog is at:

http://ackjackie.blogspot.com/

You will find it parallels Chaya’s blog. Same worries, same joys, same meds, etc. As I write this my wife is sitting on the sofa watching TV and paying bills – just like the rest of the American population without CLL! I won’t tell you it was an easy road to CLL freedom. There were plenty of bumps in the road. Most details have been fully blogged. A mini-allo is a 1+ year journey. It will take a full year of your life to begin feeling halfway normal. In my wife’s case she has finally reached a point where CLL is talked about in the past tense with not much thought given to it being a problem in the future. Life is nearly normal and 2 years have gone by rather quickly.

For Chaya…Once my wife was discharged I was worried about the possibility of infection. I went to the local home improvement store and purchased a garden sprayer. I also purchased several gallons of alcohol and a large bottle of liquid dish washing soap. I concocted a mixture of about 20% alcohol and 80% water with a smidgen of liquid soap to act as a surfactant to keep the alcohol from evaporating quite so rapidly. I tested the mixture to make certain it wasn’t flammable at these concentrations. I then sprayed EVERYTHING within the apartment on a regular, somewhat-daily basis. I usually did so as we left the apartment for a medical appointment. The concoction didn’t stain the sofa, curtains, etc. I have no idea if it did any good, but I passed along the idea to the docs and there was some mention of recommending this to others. This was probably a crazy obsession with germs. If probably made no difference but it cost about $35 dollars to add this medical procedure to a $1M transplant:)

]]>
By: WAYNE WELLS https://journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-267 Fri, 04 Apr 2008 23:51:44 +0000 http://www.journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-267 Gotta love that chart! My wife and I are rooting for the stronger spirit of the two cords though I am admittedly a bit prejudice in hoping for the male.

As my first tx looms on the horizon I have worked with my dentist to insure my dental needs are taken care of and I keep in shape by hiking, skiing etc. Great advice for anyone but essential for us CLLers. Systemic complications from mouth infection (gingivitis) has not been scientifically validated but at one time many years ago I had a periodontist tell me he had observed too many connections to joint inflammation to dismiss the idea. He told me he could not teach this to his students but there had been an archaic word “Ana-ker-ee-sis” to describe the systemic spread of toxins from infected gums to other parts of the body, mainly joints. I had two “sprained” wrists that I would describe as mildly chronic and after a gingivectomy the sprains ebbed away.

I am curious about what precautions Harvey has for those unintended little accidents that may expose his recovering immune system to fungal/bacterial agents that could enter a scrape or cut?

Keep it going Harvey!
WWW

]]>
By: Marilyn Boemer https://journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-261 Fri, 04 Apr 2008 20:52:54 +0000 http://www.journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-261 What great news! John & I are rooting for Harvey, and the fact that he’s doing well is very encouraging to us, with the stem cell transplant in our future. We need to hear about those going before us who have been cured, which will help with our fear factor. Maybe we’ll run into Richard at MDAnderson, although he’ll probably be out of there before John’s transplant happens—-the wheels turn slowly.

Best wishes, and thanks so much for all you do to keep us informed.

Marilyn

]]>
By: Stacey Derbinshire https://journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-259 Fri, 04 Apr 2008 17:56:35 +0000 http://www.journal.clltopics.net/2008/04/04/a-day-in-the-transplant-ward/#comment-259 I found your blog on google and read a few of your other posts. I just added you to my Google News Reader. Keep up the good work. Look forward to reading more from you in the future.

Stacey Derbinshire

]]>