And Chaya, the perfect coach. My best to you and Harvey. I think of you each day.
Blessings,
Rita
You are all so very
I like the idea of the female DNA winning over his new blood cells….just maybe Harvey will be become a wonder at decorating and also develop an urge to help you in the cooking & cleaning department once you’re back home! Ying + Yang
All my best to you both-
Patt E
http://ackjackie.blogspot.com/
You will find it parallels Chaya’s blog. Same worries, same joys, same meds, etc. As I write this my wife is sitting on the sofa watching TV and paying bills – just like the rest of the American population without CLL! I won’t tell you it was an easy road to CLL freedom. There were plenty of bumps in the road. Most details have been fully blogged. A mini-allo is a 1+ year journey. It will take a full year of your life to begin feeling halfway normal. In my wife’s case she has finally reached a point where CLL is talked about in the past tense with not much thought given to it being a problem in the future. Life is nearly normal and 2 years have gone by rather quickly.
For Chaya…Once my wife was discharged I was worried about the possibility of infection. I went to the local home improvement store and purchased a garden sprayer. I also purchased several gallons of alcohol and a large bottle of liquid dish washing soap. I concocted a mixture of about 20% alcohol and 80% water with a smidgen of liquid soap to act as a surfactant to keep the alcohol from evaporating quite so rapidly. I tested the mixture to make certain it wasn’t flammable at these concentrations. I then sprayed EVERYTHING within the apartment on a regular, somewhat-daily basis. I usually did so as we left the apartment for a medical appointment. The concoction didn’t stain the sofa, curtains, etc. I have no idea if it did any good, but I passed along the idea to the docs and there was some mention of recommending this to others. This was probably a crazy obsession with germs. If probably made no difference but it cost about $35 dollars to add this medical procedure to a $1M transplant:)
]]>As my first tx looms on the horizon I have worked with my dentist to insure my dental needs are taken care of and I keep in shape by hiking, skiing etc. Great advice for anyone but essential for us CLLers. Systemic complications from mouth infection (gingivitis) has not been scientifically validated but at one time many years ago I had a periodontist tell me he had observed too many connections to joint inflammation to dismiss the idea. He told me he could not teach this to his students but there had been an archaic word “Ana-ker-ee-sis” to describe the systemic spread of toxins from infected gums to other parts of the body, mainly joints. I had two “sprained” wrists that I would describe as mildly chronic and after a gingivectomy the sprains ebbed away.
I am curious about what precautions Harvey has for those unintended little accidents that may expose his recovering immune system to fungal/bacterial agents that could enter a scrape or cut?
Keep it going Harvey!
WWW
Best wishes, and thanks so much for all you do to keep us informed.
Marilyn
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